In the spring of 2021, Doctors and researchers at Columbia University Irving Medical Center (CUIMC) and Teachers College, Columbia University invited a group of Black and African American individuals with Parkinson’s Disease and their caregivers to come together to develop an educational guide designed specifically for the Black and African American community.
The Result? A beautiful Parkinson’s Disease storybook with a compilation of narratives from African American and Black individuals and caregivers who are living and thriving with Parkinson’s disease. The goal of the storybook is to inspire and connect individuals in the community by sharing the experiences of these remarkable individuals. The hope is that the stories will also educate others by removing the mysteries and misconceptions of Parkinson’s disease to provide useful resources regarding diagnosis and treatment to allow others to thrive with Parkinson’s disease.
You can also meet this group of “movers and shakers” which includes doctors, researchers, and teachers from CUIMC through videos and webinars. A series of webinars was created to allow you to meet the “movers” of this storybook and advocacy coalition to learn how they have been removing the mysteries and misconceptions of Parkinson’s in their communities through storytelling and more.
Session one features a tool for building trust, awareness and empowerment in the Black and African American communities. Session two discusses the Power of Story: Using Narratives in the Black and African American Community to Connect and Inspire Those Affected by Parkinson’s. Session three features the Role of Faith-Based Leaders in Health Promotion and Outreach in the Black and African American Communities.
You can find links to all videos and sessions as well as learn how to follow them on social media at this link: https://www.neurology.columbia.edu/patient-care/specialties/movement-disorders/pd-movers-we-keep-moving-storybook