PARKINSON
Association of Alabama, INC.
National Organizations
AARP – Caregiving Resource Center
888-687-2277
https://www.aarp.org/home-family/caregiving/
601 E Street, NW
Washington, DC 20049
Helpful articles and resources for Caregivers.
Aging Life Care-Southeast Chapter
520-881-8008
3275 W. Ina Road, Suite 130
Tucson, AZ 8574
Experts in aging well. Serving AL, GA, MS, NC, SC and TN. An Aging Life Care Manager® specializes in assisting older people and their families with long-term care arrangements. They help with the challenges of long-distance caregiving, put together a comprehensive plan for present or future needs, provide extra assistance for relocation, or monitor your relative during your vacation. There is a fee for this service.
Alabama Physical Therapy Association
251-216-3660
List of Accredited PT and PTA programs in AL. Evidence-based practice resources. Evidence, Education and information resources.
American Parkinson Disease Association (APDA)
800-223-2732
135 Parkinson Ave.
Staten Island, NY 10305-1425
Literature, Education, Support, Research, Events, Access to Local Resources, Veterans, Blog
Bachmann-Strauss Dystonia & Parkinson Foundation
212-509-0995
http://www.dystonia-parkinson.org
PO Box 38016
Albany, NY 12203
The Bachmann-Strauss Dystonia & Parkinson Foundation (BSDPF) is a voluntary, non-profit organization that was established in 1995 to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information.
Brain & Life (Parkinson Disease)
612-928-6134
201 Chicago Avenue
Minneapolis, MN 55415
Information published by the American Academy of Neurology. Information for neurology news, resources, and information on brain health for PD and other neurologic conditions. Brain & Life® is published 6 times per year and mailed free to interested individuals who complete the online form.
Brain Support Network
650-814-0848
https://www.brainsupportnetwork.org/
PO Box 7264
Menlo Park, CA 94026
Brain Support Network (BSN) is a non-profit organization dedicated to the well-being of those challenged by neurodegenerative disorders. Focused on brain donations, education and support.
Caregiver Action Network
202-454-3970
https://www.caregiveraction.org/
1150 Connecticut Ave, NW, Suite 501
Washington, DC 20036
Speak with caregivers. Tips, Caregiver toolbox, videos, stories, agencies and organizations (like assistance with Rx_) respite resources. Training for caregiver, disease-specific, health related agencies and websites.
Caregiver Stress
888-575-0946
https://www.caregiverstress.com/
Caregiver resources, expert blogs, aging issues, safe driving planner, end of life planning and more.
CareLinx
800-494-3106
Has a portal to find an in-home Caregiver close by. Features a Care Academy of videos and articles per health issue. The CareLinx Blog is a rich resource for everyone from caregivers and families, to hospitals and health plans. Stay informed about the latest industry trends.
Choose a Physical Therapist
Link to find a licensed physical therapist in your area. Has information on symptoms and conditions.
Cure Now: PD
860-918-9594
102 Pitkin Street
East Hartford, CT 06108
CureNow:PD exists to be positive agents of change in PD research. The focus is on bringing full enrollment and participation to studies and clinical trials using a local network of Parkinson’s ambassadors to make that happen.
CurePSP
800-457-4777
1216 Broadway, 2nd Floor
New York, NY 10001
CurePSP is the leading nonprofit organization working to improve awareness, education, care and cure for devastating prime of life neurodegenerative diseases. These include progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), multiple system atrophy (MSA), and others.
Daily Caring
A Caregiver's beginner's guide, managing family dynamics, caregiver wellness, etc. Daily Caring search everywhere to find the most practical and useful tips, advice, personal stories, and resources related to caregiving and aging. Then, they boil it down to the most important points you’ll want to know.
Dance for PD
800-957-1046
https://danceforparkinsons.org/
Lists Dance Classes in Alabama
Davis Phinney Foundation (DPF)
866-358-0285
http://www.davisphinneyfoundation.org
357 S McCaslin Blvd, Suite 105
Louisville, CO 80027
Literature, Ambassadors, Webinars, Blog, Every Victory Counts Manuel, The Parkinson's Podcast, Research, Events
Diann Shaddox Foundation for Essential Tremor
https://www.diannshaddoxfoundation.org/
241 Boxelder Drive
Aiken, SC 29803
Diann Shaddox Foundation for Essential Tremor is a Non-Profit public organization with the mission to educate, increase awareness about people afflicted with Essential Tremor and to find a cause and cure.
Drugs.com (PD)
List of 54 Parkinson's Disease Medications Compared - Drugs.com
Searchable database to find up-to-date drugs and conditions. Has pictures to identify pills and an Interaction checker. As well as other kinds of Parkinson's Disease (PD).
Emory Healthcare (Neurology) Parkinson’s Disease Comprehensive Care Clinic
404-727-6123
201 Dowman Drive
Atlanta, Georgia 30322
Emory is a Center of Excellence in Parkinson’s Disease and offers a variety of unique services to its patients, including a Comprehensive Care Clinic for PD patients, large deep brain stimulation (DBS) team, and a number of research opportunities.
Family Caregiver Alliance (FCA)
800-445-8106
101 Montgomery Street, Suite 2150
San Francisco, CA 94104
FCA has provided services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia. Our services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers. Ongoing support is available with FCA, also now on a digital service platform. FCA is a longtime advocate for caregivers in the areas of policy, health and social system development, research, and public awareness, on the state, national and international levels.
FamilyDoctor.org
800-274-2237
913-906-6000
11400 Tomahawk Creek Parkway
Leasood, KS 66211-2680
Trusted medical advice from the American Academy of Family Physicians. Interactive symptom checker, health-related news and articles
Find a Cure Panel & Magazine
323-717-8117
http://findacurepanel.com/index.html
PO Box 36156
Los Angeles, CA 90036
Find A Cure Panel (FACP) specializes in patient and caregiver research for general ailments, serious and rare diseases, injuries, disorders and conditions. Includes Parkinson's.
Get Palliative Care
https://getpalliativecare.org/
Getpalliativecare.org is a website providing clear, comprehensive palliative care information for people living with a serious illness. Key features of the site include a Palliative Care Provider Directory, a definition of palliative care, and detailed descriptions of what palliative care does and how to get it. It also provides an interactive quiz to assist you in deciding whether palliative care might be right for you or a loved one. The site is provided by the Center to Advance Palliative Care (CAPC).
Harvard Health Publishing
https://www.health.harvard.edu/a_to_z/parkinsons-disease-a-to-z
To read articles, you must Login. Harvard Health Publishing (HHP) is the consumer health education division of Harvard Medical School (HMS), under the direction of Dr. David H. Roberts, Dean for External Education. Our publications draw on the expertise of the 11,000+ faculty physicians at HMS, as well as our world-famous affiliated hospitals, to provide authoritative, trustworthy, and actionable health information to our global audience. Our content is delivered in easy-to-understand language that supports patient education and consumer engagement.
Huntington’s Disease Society of America
800-345-4372
212-242-1968
505 Eighth Avenue, Suite 902
New York, NY 10018
HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families.
International Congress of Parkinson’s Disease and Movement Disorders
414-276-2145
555 East Wells Street, Suite 1100
Milwaukee, WI 53202
The International Parkinson and Movement Disorder Society (MDS) is a professional society of clinicians, scientists, and other healthcare professionals who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic movement disorders, and abnormalities in muscle tone and motor control. Learn latest news, research, and advances in movement disorders.
Lewy Body Dementia Association, Inc.
800-539-9767
404-991-7897
912 Killian Hill Road SW
Lilburn, GA 30047
Patient and Caregiver services. Free publications. Local LBD Support Groups, virtual groups.
LSVT Global
Link to find a LSVT BIG or LSVT LOUD clinicians in your area. Explains what LSVT is.
Mayo Clinic (PD)
904-953-0853
https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055
Focus on PD and various health information, tests and procedures, drugs and supplements, symptoms, etc. Mayo Clinic Health Letter (Digital) is $9.99/yr. You can request an appointment online.
Medicare Rights Center
800-333-4114
https://www.medicarerights.org/
Counseling, Advocacy, Financial, Education, Policy work, News, Media Center
Medline Plus (NIH Affiliate)
301-496-4000
https://medlineplus.gov/parkinsonsdisease.html
8600 Rockville Pike
Bethesda, MD 20894
Excellent source of clinical information on PD, including resources, videos, journal articles, etc.
Michael J. Fox Foundation (MJFF)
800-708-7644
212-509-0995
Grand Central Station
PO Box 4777
New York, NY 10163-4777
Literature, Webinars, Books, Podcasts, Events, Ask the MD, Research, Young Onset PD
Middle Alabama Area Agency on Aging (M4A)
205-670-5770
866-570-2998
209 Cloverdale Circle
Alabaster, AL 35007
M4A has many programs to assist older Americans, people with a disability, and caregivers. Home delivered meals, caregiver support, senior employment program, evidenced based programs, diabetes self-management, walk with ease, and others.
MSA Coalition
866-737-5999
info@multiplesystematrophy.org
https://www.multiplesystematrophy.org/
9935- D Rea Rd #212
Charlotte, NC 28277
To distinguish MSA from PD, MSA Coalition is expanding educational initiatives to help physicians make an earlier diagnosis, participating in advocacy events to raise awareness for MSA and Rare Disease issues, leading and participating in MSA Awareness Month activities, while actively funding well-vetted MSA research grants with the goal of eventually finding a cause and a cure for Multiple System Atrophy.
National Association of Area Agencies on Aging
The National Association of Area Agencies on Aging (n4a) is a 501(c)(3) membership association representing America’s national network of 622 Area Agencies on Aging (AAAs) and providing a voice in the nation’s capital for the 256 Title VI Native American aging programs. Offers health insurance assistance, brochures, publications, resources and initiatives.
National Ataxia Foundation
763-553-0020
600 Highway 169 S, Suite 1725
Minneapolis, MN 55426
NAF offers many educational resources for Ataxia, including a comprehensive library of brochures, fact sheets, and books. NAF also publishes Generations, a quarterly magazine centered around Ataxia and families affected. We provide a number of ways for the Ataxia community to connect, such as: NAF Support Groups, a Facebook Ataxia Support Group, various Ataxia events, medical expos, and most importantly, the Annual Ataxia Conference – a two-day conference designed for Ataxia experts and Ataxia families to come together.
National Institute of Health (NIH)-Clinical Trials
8600 Rockville Pike
Bethesda, MD 20894
Search for clinical trials related to PD and whether they are recruiting participants.
National Institute of Neurological Disorders and Stroke
https://www.ninds.nih.gov/Disorders/All-Disorders/Parkinsons-Disease-Information-Page
General information about PD, including treatment, prognosis, organizations, publications, etc.
Next Step in Care
https://www.nextstepincare.org/
Next Step in Care provides easy-to-use guides to help family caregivers and health care providers work closely together to plan and implement safe and smooth transitions for chronically or seriously ill patients. Has helpful Guides and Checklists.
Northwest Alabama Council of Local Governments Department of Aging Services
256-389-0500
103 Student Drive
Muscle Shoals, AL 35661
Senior centers, Alzheimer's respite, Medicaid waiver, Ombudsman program and chronic disease self management program.
Parkinson Alliance
800-579-8440
609-688-0870
https://www.parkinsonalliance.org/
PO Box 308
Kingston, NJ 08528-0308
Assist with patient-centered research and resources.
Parkinson Association of Alabama, Inc.
833-473-5465
executive.director@parkinsonalabama.org
https://www.parkinsonalabama.com/
PO Box 590146
Birmingham, AL 35259
A nonprofit organization serving the needs and concerns of patients with Parkinson's Disease and their families/friends throughout AL. Staff engage in social and professional networking, fundraising, research support, developing and coordinating PD Support Groups, Outreach services, PD webinars, newsletters and a resource center to interact with the PD community.
Parkinson Canada
https://www.parkinson.ca/resources/educational-publications/
Fact Sheets and Publications related to Parkinson's
Parkinson Foundation’s – CareMAP
800-473-4636
https://www.parkinson.org/pd-library/careMAP-website
1359 Broadway, Suite 1509
New York, NY 10018
Managing advanced PD website. Guide to coping with complex problems that arise as a result of advanced PD. How-to videos, caregiver stories provide practical and personal tips (changes around the house, planning and scheduling, dressing, medications and swallowing, travel and transportation, care for yourself, etc.
Parkinson Wellness Fund
757-313-9729
https://www.parkinsonwellnessfund.org/
2224 VA Beach Blvd., Suite 205
Virginia Beach, VA 23454
Providing access to financial services and support needed to live an improved quality of life-today.
Parkinson Wellness Recovery PWR!
520-591-5346
PWR!4Life is a comprehensive neuroplasticity-principled program that integrates the latest research on Parkinson disease and Rehabilitation, Exercise, and Wellness. Education, empowerment, find a Coach, Motor and Non-Motor assistance, etc. Virtual Exercise. Retreats. Join their monthly newsletter.
Parkinson’s Foundation (PF)
800-473-4636
1359 Broadway, Suite 1509
New York, NY 10018
Helpdesk, PD Library-Literature, Professional Education, Events, Research
Parkinson’s Life
1 Cobden Road
Sevenoaks, Kent, TN
13 3UB United Kingdom
Launched in mid-2015, PL has been dedicated to publishing high-quality content for the international Parkinson’s community. Voices, Well-Being, Research, Podcasts, etc.
Parkinson’s News Today
800-936-1363
https://parkinsonsnewstoday.com/
1601 Market Street, Suite 20A105
Philadelphia, PA 19103
News and information to stay up to date on all the latest on Parkinson’s disease. Newsletter subscriptions available. There is also a Forum for Parkinson’s Disease Caregivers.
Parkinson’s Resource Organization
760-773-5628
877-775-4111
https://www.parkinsonsresource.org/
74785 CA-111
Indian Wells, CA 92210
A social service organization in Palm Desert CA to insure no one with PD is isolated. Articles, online groups and events. Also has a monthly newsletter.
Rock Steady Boxing
317-205-9198
7440 N. Shadeland Avenue, Suite 202
Indianapolis, IN 46250
Resource for local Rock Steady Boxing classes and affiliate programs throughout AL. Blog and News.
The Association for Frontotemporal Degeneration
866-507-7222
290 King of Prussia Rd, Radnor Station Bldg 2, Suite 320
Radnor, PA 19087
Site has reliable information, valuable resources and support from others who understand FTD.
The Conversation Project (Institution for Healthcare Improvement)
617-391-9913
https://theconversationproject.org/
53 State St, 19th Floor
Boston, MA 02109
The Conversation Project® is a public engagement initiative with a goal that is both simple and transformative: to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.
Tremor Action Network
510-681-6565
888-387-3667
913-341-3880
PO Box 5013
Pleasanton, CA 94566
PO Box 14005
Lenexa, Kansas 66285-4005
Service of the International Essential Tremor Foundation to provide hope to the essential tremor (ET) community worldwide through awareness, education, support and research.
UAB Medicine (Neurology—Movement Disorders Clinic)
205-801-8986
https://www.uabmedicine.org/patient-care/conditions/parkinsons-disease
2000 6th Ave. S, 2nd Floor
Birmingham, AL 35233
UAB’s commitment to pioneering research keeps us on the forefront of medical discoveries, which could lead to opportunities for you to participate in clinical studies and receive medications and treatments not available at other medical centers.
Veteran’s Administration-Parkinson’s Disease & Geriatric and Extended Care
205-933-8101
https://www.parkinsons.va.gov/
2415 7th Avenue S
Birmingham, AL 35233-3317
Has links to national PD organizations, PADRECCs, Consortium Centers, VA PD Newsletter, a tab for Palliative Care video and or Caregiving, Community Living Centers, etc. State and Local Resources as well.
WebMD
https://www.webmd.com/drugs/2/index
Well Spouse Association
732-577-8899
63 West Main St., Suite H
Freehold, NJ 07728
Addresses needs and resources for caregivers. Has Support Groups, Newsletters, Events, Webinars, etc.
What Matters Now
877-365-5533
http://www.whatmattersnow.org/
20660 Stevens Creek Blvd #320
Cupertino, CA 95014
A website for Patient Support; allows patients to create their own free, private What Matters Now site to: Easily keep family and friends up to date, Share what's really happening, Reflect deeply, and Celebrate life.
World Parkinson Coalition, Inc.
646-388-7688
https://www.worldpdcoalition.org/
1359 Broadway, Suite 1509
New York, NY 10018
The World Parkinson Coalition® provides the only international forum on Parkinson's disease that invites all stakeholders to learn about the latest scientific discoveries, medical practices, and care initiatives that improve the lives of people living with Parkinson's disease. It is also the host of World Parkinson Congresses (conferences).