The Case For A National System Protecting Research Subjects

By Jean Burns

Can you imagine facing experimental brain surgery knowing that if you had a stroke on the table, your family’s only recourse to get Long term care for you would be to sue the federal gov’t?  I know how it feels. I took that risk.

I hope you will read this article about my participation in a recent NIH Bioethics Grand Round:

Don’t humans who volunteer for risky clinical trials deserve a safety net? Isn’t it time for change? If the research community that experiments on human beings is unwilling to care for those whom they may damage during research, why should humans continue to volunteer? (and by the way, I DO believe in fairness & justice.) Can we start making noise about this problem? I need your help. ALL  human clinical trial participants need your help.

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