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How to Plan for Future Care Costs When You Are Living with a Disability

by Ed Carter
Living with a disability can mean living with unique challenges when it comes to your care. Those challenges can result in added health and living expenses, which you may have no issue covering at this point in your life. As you grow older and your care needs increase, however, it’s important to have a plan in place that will prevent those costs from overwhelming your finances, or even prevent you from accessing the care you need, and planning for these things can help.
 
Adequate Life Insurance  
 
One of the main reasons that you should plan for your future care is to protect your loved ones from having to assume any related costs. That’s why buying enough life insurance should be your top priority. Having enough life insurance coverage will ensure that your family members will have enough funds to pay for end-of-life expenses, including funeral costs and leftover medical debts. With so many tools, resources and guides available online, you can even purchase life insurance from the comfort of your own home, and online calculators can help you figure out how much insurance will provide the most peace of mind. No matter what your role is, whether you are the primary income earner or the primary care provider, having life insurance is a must if you want to protect loved ones from hardship during an already painful experience.
 
A Complete Estate Plan 
 
Life insurance can provide the financial cushion your family will need to stay afloat if you should unexpectedly pass away. If you want those funds to provide the maximum financial benefit to your family, however, you also need an estate plan. Although life insurance funds will pass to your beneficiaries, establishing additional layers of financial protection, such as a will and trusts, can prevent your assets from being distributed by the state and can also help surviving family members avoid costly probate and estate taxes. You may be able to use online tools for basic estate planning, but hiring an estate attorney is your best bet for making sure these documents are legal and that your final wishes are carried out after your passing. Another option is to hire a financial planner to walk you through some of these estate planning steps.
 
Legal Advice and Paperwork 
 
If you want to establish a financial plan for your future care and ensure that plan is carried out by your loved ones, then you will also want to discuss essential caregiving documents with your attorney. For example, if you would like a relative to be able to make decisions regarding your medical care when you cannot do so yourself, you will need a durable power of attorney for healthcare. In order for that family member to make financial decisions, you will need a standard power of attorney, but there are a couple of other legal documents that need to be in place in order for you to receive your desired level of care. Just like with an estate plan, completing this power of attorney and other living legal documents can require a lot of time and attention to detail. So, you may want to have an experienced attorney prepare this paperwork for you.
 
Some Extra Help 
 
If you are living with a disability and close to retiring, you may be more likely to need some variety of care as you get older. Many people find that residing in an assisted living facility enables them to get the help they need (e.g., cleaning, meal planning) while still remaining independent. Before choosing this option, be sure to tour local facilities to figure out which ones have the amenities you need and fit your budget. For instance, in Alabama, the median cost per year for residing in assisted living is $39,000.
 
Creating a financial plan can help ensure that you receive the best care. It can also protect your family from undue financial burdens. So, make sure you include the must-haves above in your financial plan for your future care.

The Apple Watch just got a lot better at tracking symptoms of Parkinson’s Disease

by |

The Apple Watch will soon be able to track tremors experienced by Parkinson’s Disease patients to help them manage their condition.

Later this year, Apple will release a software update to make it easier for medical researchers to understand the difference between a random movement, and the shakes and dyskinesia that Parkinson’s patients experience when they’re getting treated with medications.

Apple made the announcement this week at its developer conference, WWDC.

The new “movement disorder API” will accelerate research that’s already underway in how wearable devices can be used to track the progression of Parkinson’s, said Peter Schmidt, a Parkinson’s researcher and vice dean of the Brody School of Medicine at East Carolina University, who has been advising Apple’s health team.

About 60,000 people are diagnosed every year with Parkinson’s in the U.S. alone and an estimated 10 million people have the disease globally. Not all of these patients will have access to an Apple Watch, or be able to afford one, but Apple is starting to work with health insurance companies like Aetna in figuring out ways to subsidize the cost.

CLICK TO READ THE FULL ARTICLE

Source: CNBC

Neuroscience Cafe: Sleep, Life Balance, and Parkinson’s Disease

The March NeuroScience Cafe is this Thursday, March 14 and covers Sleep, Life Balance, and Parkinson’s Disease. Brought to you by UAB’s Comprehensive Neuroscience Center (CNC), the March cafe will be held at the Emmet O’Neal Library (Community Meeting Room, Emmet O’Neal Library 50 Oak St., Mountain Brook, AL 35213). For more information visit the event page.

Exercise is Regenerative Medicine: Impact on Parkinson’s Disease

The May NeuroScience Cafe is right around the corner and this month’s topic is Exercise is Regenerative Medicine: Impact on Parkinson’s Disease. Brought to you by UAB’s Comprehensive Neuroscience Center (CNC), the May cafe will be held at the Hoover Public Library (200 Municipal Drive, Hoover, AL 35216) Monday, May 21 at 6:30 PM and lead by Dr. Marcas Bamman from the Department of Neurology at UAB.

The overall goal of these cafés is to help educate the public on the latest clinical care and neuroscience-related research taking place at UAB. Our audience is typically made up of older adults as well as individuals and family members who have been affected by the topic. The program runs for about an hour and is very casual and relaxed!

We would love for anyone involved in the Parkinson Association of Alabama to come and learn about the insights from neuroscience research.

January CNC NeuroScience Cafe: The Brain-Gut Connection

The January NeuroScience Cafe is right around the corner and this month’s topic is The Brain-Gut Connection: Parkinson’s Disease. Brought to you by UAB’s Comprehensive Neuroscience Center (CNC), the January cafe will be held at the Hoover Public Library (200 Municipal Drive, Hoover, AL 35216) on Monday, January 22 at 6:30 PM and lead by Dr. Haydeh Payami from the Department of Neurology at UAB.

The overall goal of these cafés is to help educate the public on the latest clinical care and neuroscience-related research taking place at UAB. Our audience is typically made up of older adults as well as individuals and family members who have been affected by the topic. The program runs for about an hour and is very casual and relaxed!

We would love for anyone involved in the Parkinson Association of Alabama to come and learn about the insights from neuroscience research

ParkinsonTV Episode 1: Exercise and Parkinson’s

PAA is thrilled to highlight ParkinsonTV, a PD information resource initiative for patients, caregivers, and medical professionals piloted by the University of Rochester, in collaboration with Dr. Bas Bloem and Radboud University in the Netherlands.

This educational TV series brings together neurologists, patients, and topic experts to discuss different aspects of living with Parkinson’s and ways to maximize quality of life. The first season will consist of six episodes on exercise, medication, nutrition, advanced therapies, speech therapy, and occupational therapy with new episodes airing each Tuesday at 8:00PM.

NeuroScience Cafe at the Emmet O’Neal Library

The UAB Comprehensive NeuroScience Center is hosting a Parkinson’s Disease Update as part of their NeuroScience Cafe series this Thursday, September 14 at 6:30PM from the Emmet O’Neal Library. This interactive presentation will provide an update from thought leaders at UAB Neurology on efforts to combat Parkinson’s disease in the lab and the clinic. This can’t miss event is free, open to the public, and all interested patients, caregivers, and medical professionals are encouraged to attend.

Where: Emmett O’Neal Library, 50 Oak Street, Mountain Brook AL, 35213

When: Thursday, September 14 at 6:30 PM

CLICK THIS LINK FOR MORE INFORMATION

 

Parkinson’s Choices: Playing an Active Role In Your Treatment Plan

Registration is now open for the next installment in the APDA Spotlight series, Parkinson’s Choices: Playing an Active Role In Your Treatment Plan. 

This event is scheduled for Wednesday, August 17 from 12:00 – 1:00 Central Time and will be accessible online and via conference call. The presenters will be Dr. Jaime Hatcher-Martin of Emory University School of Medicine and Dr. Harrison Walker of the University of Alabama at Birmingham. Registration is free and open to the public. Please review the form below for registration instructions and additional information.

http://45.33.103.115/wp-content/uploads/2016/08/PDF_-Spotlight-on-Parkinsons-Choices.pdf

Registration is open for Partners in Parkinson’s Birmingham!

Registration is open for Partners in Parkinson’s Birmingham and The Parkinson’s Association of Alabama is thrilled to be the local partner for this fantastic initiative! This event is open to the public and admission is free. Partners in Parkinson’s Birmingham is March 19th from 9:00 AM to 3:30 PM at the Cahaba Grand Conference Center.

Partner’s in Parkinson’s is a strategic collaboration between The Michael J. Fox Foundation and AbbVie intended to inform and empower Parkinson’s patient’s and families so they may influence the best possible care through every stage of the disease.

To register and learn more about this great event, visit: PARTNERSINPARKINSONS.ORG/ATTENDBIRMINGHAM

 

 

Parkinsons documentary Capturing Grace airing on PBS

PBS is airing Capturing Grace in markets all over the country over the next several months.  If you are not familiar with this film, it is the story of dancers from the Dance for PD class at the Mark Morris Dance Center in Brooklyn, NY. Click here for showtimes and watch the trailer below.