Posts

Taste for a Cure 2019

PAA is thrilled to announce that Taste for a Cure 2019, presented by the Ernest G. DeBakey Charitable Foundation, is Thursday, April 11 at 6:00 PM. Join us at Haven on World Parkinson’s Day for another great evening of:

Proceeds from Taste for a Cure 2019 benefit medical research towards a cure for Parkinson’s disease. Follow this link to purchase tickets online now. Follow us on Facebook, Twitter, and Instagram for the latest event details. If you’d like to be a sponsor for this event, please contact Mary T Miller for more information.

Save the Date! Taste for a Cure 2018

Save the date Birmingham! PAA is thrilled to announce that Taste for a Cure 2018, presented by the Ernest G. DeBakey Charitable Foundation, is Thursday, April 19 at 6:00 PM. We look forward to seeing you at Haven for another great evening of:

Proceeds benefit medical research towards a cure for Parkinson’s disease. Tickets may be purchased online now and you can follow us on Facebook or Twitter for the latest updates. If you’d like to be a sponsor for this event, please contact Mary T Miller for more information.

 

Online Survey Participants Needed: Alabama PD Patients and Caregivers

Find a Cure Panel (FACP) specializes in patient research for rare and serious diseases and they have some confidential and anonymous online research for people and caregivers with PD. If you complete the survey, FACP will donate $50 to the Parkinson’s Association of Alabama.

The completed survey is tracked anonymously off the customized link below.

To qualify for this online survey,

1)      You or your loved must have had PD for 5+ years;

2)      a) Your or your loved one must have or had experience with DBS OR b) be currently on Sinemet or Rytary or their generics.

3)      PD must have some impact on your life. If you have NO off time then you will not qualify for this research.

4)      It’s best to take the survey on a computer/ipad/tablet and NOT a smart phone.

If you are interested in participating, please click on the survey link below.

Survey link

https://www.sampleczar.com/survey/SC_RD.aspx?supplier_id=5096

If you have any questions about participating, please email FACP at info@findacurepanel.com

Purchase Tickets Now! Taste for a Cure 2017

PAA is thrilled to announce that tickets are now on sale for Taste for a Cure 2017We look forward to seeing you at Haven on  Thursday, April 27 at 6:30 PM for another great evening of:

Proceeds benefit medical research towards a cure for Parkinson’s disease. Follow us on Facebook or Twitter for the latest event announcements and contact Mary T Miller if you’d like to be a sponsor or need additional information.

Click this link to purchase tickets online from the secure PAA digital ticketing hub provided by the awesome folks at Instagift.

Save the Date! Taste for a Cure 2017

Save the date Birmingham! PAA is thrilled to announce that Taste for a Cure 2017 is Thursday, April 27 at 6:30 PM. We look forward to seeing you at Haven for another great evening of:

Proceeds benefit medical research towards a cure for Parkinson’s disease. Options to purchase tickets online will be available soon and you can follow us on Facebook or Twitter for the latest updates. If you’d like to be a sponsor for this event, please contact Mary T Miller for more information.

 

Breaking News: A New Dyskinesia Drug Will Be Submitted to FDA This Year

By Holly Teichholtz

A new formulation of amantadine to better treat levodopa-induced dyskinesia is entering the home stretch. Its developer, Emeryville, California-based biotech Adamas Pharmaceuticals, expects to file an NDA (New Drug Application) with the U.S. Food and Drug Administration later this year.

According to Nasdaq:

“Data from the study demonstrated a statistically significant reduction in LID at 12 weeks in patients receiving ADS-5102 compared with placebo, as assessed by the Unified Dyskinesia Rating Scale (UDysRS). The candidate was safe and generally well tolerated. The study met its primary endpoint.[…] Results from the study showed an improvement in activities of daily living (ADLs) in PD patients.”

As FoxFeed reported in December 2015, the company measured the impact of the drug using a new dyskinesia rating scale developed by Chris Goetz, MD, and Glenn Stebbins, PhD, of Rush University Medical Center with support from The Michael J. Fox Foundation.

Source:: Fox Feed Blog

Tracking Eye Movement to Diagnose Parkinson’s

By Kat McCarrick

The Michael J. Fox Foundation for Parkinson’s Research (MJFF) recently awarded a $1 million grant to The Virginia Commonwealth University (VCU) Schools of Medicine and Engineering to test a tool for diagnosing Parkinson’s disease (PD). Currently, there is no objective measurement (such as a blood test) doctors can use to definitively diagnose Parkinson’s disease. Researchers at VCU have developed a non-invasive eye test that could potentially inform whether someone has Parkinson’s disease.

Using infrared lights, the test tracks the eye movements of a person as they stare at a screen and follow prompts. Eye movements typically follow very distinct patterns. In Parkinson’s disease, the loss of cells that use dopamine (a brain chemical) to coordinate movement can cause alterations in these patterns. While these changes may be unnoticeable to a casual observer, they could be detected with more sensitive eye testing, such as that used by VCU researchers.

With the support of MJFF, the VCU team will replicate their research in additional academic centers in order to verify that the test is in fact able to accurately diagnose Parkinson’s. In addition, they hope to prove that the test can detect Parkinson’s before physical symptoms are present. Earlier and more precise diagnosis would allow doctors to begin disease-targeted therapies before the disease progresses and could also prevent misdiagnosis.

Read a post from the “Ask the MD” blog series to learn more about vision and Parkinson’s disease and how to manage visual symptoms.

Source:: Fox Feed Blog

Save the Date! Taste for a Cure 2016

Save the date Birmingham! Taste for a Cure 2016 is Thursday, April 21 at 6:30 PM. Join us at Old Car Heaven for another great evening of unique food, beer, and wine pairings conceived and prepared by an all-star team of local chefs. All proceeds benefit medical research towards a cure for Parkinson’s disease.

Options to purchase tickets online will be available soon and you can follow us on Facebook or Twitter for the latest updates. If you’d like to be a sponsor for this event, contact Mary T Miller at maryt@parkinsonalabama.org for more information.