Parkinson’s Choices: Playing an Active Role In Your Treatment Plan

Registration is now open for the next installment in the APDA Spotlight series, Parkinson’s Choices: Playing an Active Role In Your Treatment Plan. 

This event is scheduled for Wednesday, August 17 from 12:00 – 1:00 Central Time and will be accessible online and via conference call. The presenters will be Dr. Jaime Hatcher-Martin of Emory University School of Medicine and Dr. Harrison Walker of the University of Alabama at Birmingham. Registration is free and open to the public. Please review the form below for registration instructions and additional information.

http://45.33.103.115/wp-content/uploads/2016/08/PDF_-Spotlight-on-Parkinsons-Choices.pdf

MJFF Podcast: Parkinson’s Personalized Medicine

By Maggie McGuire Kuhl

While everyone who has Parkinson’s shares the same diagnosis, each person’s experience of the disease can vary greatly. As Michael J. Fox once observed, “Everyone gets their own version of Parkinson’s disease. Unfortunately none comes with operating guide.” But what if there were operating instructions? What if we figured out a way to treat each person’s based on their specific symptoms or disease type? It’s an approach often referred to as personalized medicine.

“Personalized medicine or precision medicine is this really compelling idea that if we can better understand not just the clinical symptoms someone has but actually their underlying disease biology, we can tailor treatments that target that underlying biology of the disease and therefore more optimally treat the patient,” said Brian Fiske, PhD, Senior Vice President of Research Programs at The Michael J. Fox Foundation.

In our latest podcast, Dr. Fiske explains how we’re moving closer to personalized medicine for Parkinson’s disease. Hear more from Dr. Fiske and other panelists on this topic in our next Third Thursdays Webinar: “Would One Parkinson’s Treatment Fit All?” on April 21, 2016 at 12 p.m. ET/9 a.m. PT. Register now.

Source:: Fox Feed Blog

5 Tips For Educating Your Patients On Parkinson’s Disease

By Megan Ray

As a health professional it’s important to educate your patients on prevalent diseases to ensure that they’re doing everything they can to avoid them. It’s also essential that they know how to support loved ones if they’re diagnosed with one of these common illnesses. For example, during Parkinson’s Awareness Month in April, it’s essential to familiarize patients with the progressive movement disorder and how it impacts people across the U.S. Here are a few tips for helping your patients understand Parkinson’s.

1. Provide details on how the disease develops.
Most people have heard of Parkinson’s disease, a condition that affects as many as 1 million Americans, according to the Parkinson’s Disease Foundation. However, you may find that if you asked your patients what exactly Parkinson’s is, they wouldn’t know how to answer. This is why explaining how the disease develops is a good starting point when educating people on the condition. Note that Parkinson’s occurs when the vital nerve cells in the brain called neurons start to malfunction and eventually die. These neurons are fundamental to people’s health because they produce dopamine, a chemical that sends messages to the brain that coordinate movement and muscle coordination. Individuals who have a very low level of dopamine begin to experience difficulty controlling their movements and are often diagnosed with Parkinson’s.

2. Explain the treatment options for the condition.
Point out to your patients that one of the reasons Parkinson’s is such as serious disease is that there isn’t currently a cure for the condition. A significant amount of research has been performed over the past several years to uncover possible causes. As a result, many effective treatment and therapy options are available for Parkinson’s patients to alleviate the symptoms of the disease. Potential causes that have been studied include environmental and genetic factors.

3. Educate them on the symptoms.
While every patient has a different experience with Parkinson’s in regard to how quickly it progresses and the side effects they notice, there are four main symptoms that most people will develop. These include tremors in the hands, legs, jaw and arms, muscle stiffness or rigidity, bradykinesia – or slowness of movement – and posture instability. Other common side effects include fatigue, constipation, sleep disturbances, depression, anxiety and a decline in cognitive function, according to the Parkinson’s Disease Foundation.

4. Emphasize the importance of screenings.
While an estimated 1 million people in the U.S. may be living with Parkinson’s disease, only about 60,000 have been diagnosed, as it’s not uncommon for cases to go undetected. Don’t forget to point out that only four percent of those diagnosed with the disease are under the age of 50, as people’s risk of Parkinson’s increases with age. Statistics also show that men are slightly more vulnerable to the disease. Encourage patients to see their doctor if they experience any of the symptoms of the condition, such as tremors. The sooner that they can begin receiving therapy or treatment for their symptoms, the less of an impact Parkinson’s will have on their daily lives.

5. Provide them with resources for support.
Whether your patients have recently been diagnosed with the disease, are caring for a loved one who has been diagnosed or know someone with the condition, they’ll probably want to know who to reach out to for help. For example, caregivers may want information on local support groups and guides to understanding the common symptoms of the disorder. Handing out your own pamphlets is a great way to give patients direct access to key facts and resources. However, directing them to the resources provided by the National Parkinson’s Foundation and the organization’s helpline at 1.800.4PD.INFO or helpline@parkinson.org is also an effective way to ensure they have the assistance they need when required.

Source:: The Sunrise Blog