Adaptive fitness class focused on Parkinson’s patients

Registration is now open for Adaptive Fitness at EW Motion therapy. Taught by Katie Cederberg (ACSM CPT) Adaptive Fitness is designed for Parkinson’s patients to increase overall fitness through evidence-based, safe, and effective full body workouts. The class seeks to improve participant balance, strength, flexibility, and mobility with adaptive exercises using exercise bands, medicine balls, weights, and Kettlebells. All exercises are adapted to fit each person’s strength and individual needs, including the option for chair, or wheel-chair based exercises.

The cost is $30 per class or $200 for 8 sessions. The class is taught each Saturday at 10:30 AM. CLICK THIS LINK TO SIGN-UP FOR THE CLASS ONLINE.

Katie Cederberg, ACSM CPT, is a doctoral student in the Rehabilitation Science Program at the University of Alabama at Birmingham, where she dedicates her time and effort to increasing physical activity and exercise for people with physical disabilities. She received her Bachelor’s degree from Linfield College in McMinnville, Oregon and her Master’s Degree in Exercise Science from Central Washington University. She previously worked as a fitness specialist at Oregon Health and Science University in Portland, Oregon where she developed individualized exercise programs for people with and without disabilities.

Brian Grant Won’t Back Down From Parkinson’s Disease

by Chris Ballard

He could hear the roar from the back hallway of the Rose Garden, the clatter of 20,000 fans.

For years, Brian Grant had fed off that roar, back when Blazers fans wore T-shirts that read “Rasta Monsta” and embraced him as they had few others. Never the fastest, biggest or most skilled, Grant got by on hustle and desire. What was it Tim Duncan once said? “Hardest-working guy in the league. You’ve got to respect that cat.” And Grant took pride in that. On playing an entire season with a torn labrum. On never backing down, whether it was guarding Karl Malone or levering his 6’9″ frame into Shaquille O’Neal. On trying harder than anyone else. He got out of Georgetown, Ohio, by not trying; survived 12 years in the league by trying; tore up both knees by trying.

But now, standing in that concrete corridor on a November night in 2008, two years after his final NBA game, Grant felt only fear and anxiety. He was there to honor an old friend, former Blazer Kevin Duckworth, who’d died of heart failure at 44. All Grant needed to do was be present. Wave, bow his head, pay his respects. And yet he’d already sweated through his white undershirt, the perspiration breaching his blue button-down and threatening his navy blazer. He thought about ducking into the bathroom to towel off, maybe even bolting the arena. Read more at Sports Illustrated…

Source: Sports Illustrated


Weight Loss Linked to Worse Outcomes in Parkinson’s Patients, Study Shows

By Patricia Inacio, PhD

Weight loss in Parkinson’s disease patients increases the risks for dementia and dependency care, and reduces patients’ life expectancy, according to a new study.

These findings suggest that monitoring weight and timely dietary interventions to counteract weight loss may significantly improve the outcome of Parkinson’s disease patients.

The study, “Early weight loss in parkinsonism predicts poor outcomes: Evidence from an incident cohort study,” was published in the journal Neurology.

Researchers at the University of Aberdeen in Scotland followed 515 participants – 187 with Parkinson’s disease, 88 with the so-called atypical parkinsonism, and 240 controls – for a median of five years. During this period they registered patients’ weight and evaluated how weight variations influenced disease outcomes.

Individuals with atypical parkinsonism are characterized by some of the signs and symptoms of Parkinson’s disease – such as tremor, slowness, and walking problems – without having a Parkinson’s disease diagnosis.

“Weight loss is a common problem in Parkinson’s but it wasn’t clear before we did this how common it was, mainly because of biases in previous studies, or what the consequences were of weight loss. Our hypothesis was that people who are losing weight were going to have adverse outcomes,” Dr. Angus Macleod, the study’s lead author, said in a press release.

The results showed that patients with Parkinson’s disease and parkinsonism have, from early on, lower body weights compared to those without the disease, or controls. Further analysis also showed that weight loss occurring within one year of diagnosis was associated with a higher risk of dependency (patients are no longer able to perform daily activities), dementia, and death.

“Our finding that those who lose weight have poorer outcomes is important because reversing weight loss may therefore improve outcomes,” Macleod said. “Therefore, it is vital that further research investigate whether e.g. high calorie diets will improve outcomes in people with Parkinson’s who lose weight.”

“While other studies have demonstrated that weight loss is common in Parkinson’s, this is the first to consider the impact this symptom may have,” said Prof. David Dexter, deputy director of research at Parkinson’s UK, a charity that contributed funding for the research.

“It has yet to be determined whether this quicker progression can be corrected by supplementation with a high calorie diet, however this could be a key potential development,” Dexter added.

The post Weight Loss Linked to Worse Outcomes in Parkinson’s Patients, Study Shows appeared first on Parkinson’s News Today.

Source:: Parkinson’s Today

9 Ways to Manage Brain Fog

By Wendy Henderson

One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients can minimize its effects and lead a normal life.

We’ve put together a list of 10 ways to help manage brain fog, with help from,, and Web MD.

Write Things Down
Everyone forgets things now and then, but having brain fog often means forgetting important dates and occasions. Keep a to-do list and a calendar in a highly visible location, or use an online diary to keep track of what each day holds. There are many mobile apps that can also help with organization.

Exercise the Body
Exercise offers a chance to turn off from all the usual things that occupy the mind. It can also improve sleep, which can in turn improve cognitive skills.

Exercise the Mind
Take the time to do thought-challenging exercises like crosswords, sudoku and jigsaw puzzles, or learn a new language. In addition, maintaining a hobby will keep the mind focused on something positive.

MORE: 10 benefits of having a service or therapy dog when you have Parkinson’s

Pick the Right Time of Day
Whether a morning lark or night owl, we all have certain times when we feel more alert. Choose a time each day when your concentration is at its highest to tackle difficult and complex tasks.

Eat a Brain-Healthy Diet
Eat lots of good fats known for brain health such as nuts, avocados, coconut oil, and omega-3-rich foods.

Get Plenty of Rest
Quality sleep and restorative naps (when appropriate) can dramatically improve cognitive health. Try to keep to a routine bedtime and waking time, even on the weekend, to promote a good sleep pattern.

MORE: How you can manage fatigue with corrective stretching exercises

Go Easy on Yourself
Don’t overdo it. Ask for help when needed and try to rest as much as possible to conserve energy. Participate in calming activities like taking a stroll through a peaceful spot, reading a book, or listening to music.

Organize Your Home and Workspace
Reorganize your living and working space so that everything you need regularly is easily accessible. This can help conserve energy and provide peace of mind.

Plan Ahead
If brain fog is worse first thing in the morning, laying out clothes the night before will be one less thing to have to stress over in the morning. Sort meds into a daily medication box so you know when you’re up to date and can easily make sure you haven’t forgotten to take them (or don’t take them more than once).

MORE: New Microsoft watch can quiet Parkinson’s tremors

Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

The post 9 Ways to Manage Brain Fog appeared first on Parkinson’s News Today.

Source:: Parkinson’s Today

Parkinson’s Choices: Playing an Active Role In Your Treatment Plan

Registration is now open for the next installment in the APDA Spotlight series, Parkinson’s Choices: Playing an Active Role In Your Treatment Plan. 

This event is scheduled for Wednesday, August 17 from 12:00 – 1:00 Central Time and will be accessible online and via conference call. The presenters will be Dr. Jaime Hatcher-Martin of Emory University School of Medicine and Dr. Harrison Walker of the University of Alabama at Birmingham. Registration is free and open to the public. Please review the form below for registration instructions and additional information.

MJFF Podcast: Parkinson’s Personalized Medicine

By Maggie McGuire Kuhl

While everyone who has Parkinson’s shares the same diagnosis, each person’s experience of the disease can vary greatly. As Michael J. Fox once observed, “Everyone gets their own version of Parkinson’s disease. Unfortunately none comes with operating guide.” But what if there were operating instructions? What if we figured out a way to treat each person’s based on their specific symptoms or disease type? It’s an approach often referred to as personalized medicine.

“Personalized medicine or precision medicine is this really compelling idea that if we can better understand not just the clinical symptoms someone has but actually their underlying disease biology, we can tailor treatments that target that underlying biology of the disease and therefore more optimally treat the patient,” said Brian Fiske, PhD, Senior Vice President of Research Programs at The Michael J. Fox Foundation.

In our latest podcast, Dr. Fiske explains how we’re moving closer to personalized medicine for Parkinson’s disease. Hear more from Dr. Fiske and other panelists on this topic in our next Third Thursdays Webinar: “Would One Parkinson’s Treatment Fit All?” on April 21, 2016 at 12 p.m. ET/9 a.m. PT. Register now.

Source:: Fox Feed Blog

5 Tips For Educating Your Patients On Parkinson’s Disease

By Megan Ray

As a health professional it’s important to educate your patients on prevalent diseases to ensure that they’re doing everything they can to avoid them. It’s also essential that they know how to support loved ones if they’re diagnosed with one of these common illnesses. For example, during Parkinson’s Awareness Month in April, it’s essential to familiarize patients with the progressive movement disorder and how it impacts people across the U.S. Here are a few tips for helping your patients understand Parkinson’s.

1. Provide details on how the disease develops.
Most people have heard of Parkinson’s disease, a condition that affects as many as 1 million Americans, according to the Parkinson’s Disease Foundation. However, you may find that if you asked your patients what exactly Parkinson’s is, they wouldn’t know how to answer. This is why explaining how the disease develops is a good starting point when educating people on the condition. Note that Parkinson’s occurs when the vital nerve cells in the brain called neurons start to malfunction and eventually die. These neurons are fundamental to people’s health because they produce dopamine, a chemical that sends messages to the brain that coordinate movement and muscle coordination. Individuals who have a very low level of dopamine begin to experience difficulty controlling their movements and are often diagnosed with Parkinson’s.

2. Explain the treatment options for the condition.
Point out to your patients that one of the reasons Parkinson’s is such as serious disease is that there isn’t currently a cure for the condition. A significant amount of research has been performed over the past several years to uncover possible causes. As a result, many effective treatment and therapy options are available for Parkinson’s patients to alleviate the symptoms of the disease. Potential causes that have been studied include environmental and genetic factors.

3. Educate them on the symptoms.
While every patient has a different experience with Parkinson’s in regard to how quickly it progresses and the side effects they notice, there are four main symptoms that most people will develop. These include tremors in the hands, legs, jaw and arms, muscle stiffness or rigidity, bradykinesia – or slowness of movement – and posture instability. Other common side effects include fatigue, constipation, sleep disturbances, depression, anxiety and a decline in cognitive function, according to the Parkinson’s Disease Foundation.

4. Emphasize the importance of screenings.
While an estimated 1 million people in the U.S. may be living with Parkinson’s disease, only about 60,000 have been diagnosed, as it’s not uncommon for cases to go undetected. Don’t forget to point out that only four percent of those diagnosed with the disease are under the age of 50, as people’s risk of Parkinson’s increases with age. Statistics also show that men are slightly more vulnerable to the disease. Encourage patients to see their doctor if they experience any of the symptoms of the condition, such as tremors. The sooner that they can begin receiving therapy or treatment for their symptoms, the less of an impact Parkinson’s will have on their daily lives.

5. Provide them with resources for support.
Whether your patients have recently been diagnosed with the disease, are caring for a loved one who has been diagnosed or know someone with the condition, they’ll probably want to know who to reach out to for help. For example, caregivers may want information on local support groups and guides to understanding the common symptoms of the disorder. Handing out your own pamphlets is a great way to give patients direct access to key facts and resources. However, directing them to the resources provided by the National Parkinson’s Foundation and the organization’s helpline at 1.800.4PD.INFO or is also an effective way to ensure they have the assistance they need when required.

Source:: The Sunrise Blog