ParkinsonTV Episode 1: Exercise and Parkinson’s

PAA is thrilled to highlight ParkinsonTV, a PD information resource initiative for patients, caregivers, and medical professionals piloted by the University of Rochester, in collaboration with Dr. Bas Bloem and Radboud University in the Netherlands.

This educational TV series brings together neurologists, patients, and topic experts to discuss different aspects of living with Parkinson’s and ways to maximize quality of life. The first season will consist of six episodes on exercise, medication, nutrition, advanced therapies, speech therapy, and occupational therapy with new episodes airing each Tuesday at 8:00PM.

NeuroScience Cafe at the Emmet O’Neal Library

The UAB Comprehensive NeuroScience Center is hosting a Parkinson’s Disease Update as part of their NeuroScience Cafe series this Thursday, September 14 at 6:30PM from the Emmet O’Neal Library. This interactive presentation will provide an update from thought leaders at UAB Neurology on efforts to combat Parkinson’s disease in the lab and the clinic. This can’t miss event is free, open to the public, and all interested patients, caregivers, and medical professionals are encouraged to attend.

Where: Emmett O’Neal Library, 50 Oak Street, Mountain Brook AL, 35213

When: Thursday, September 14 at 6:30 PM

CLICK THIS LINK FOR MORE INFORMATION

 

MJFF Podcast: Treating Parkinson’s Hallucinations and Delusions

By Michael J. Fox Foundation

This week’s MJFF Podcast features Dr. Rachel Dolhun and explores Parkinson’s disease psychosis, including hallucinations and delusions, and discusses treatments for this symptom.

Parkinson’s disease psychosis can affect up to 40 to 50 percent of people with the disease. It can include hallucinations (seeing things that aren’t there) and delusions (fixed, false beliefs).

To treat this symptom, doctors have used traditional anti-psychotic drugs, but those have presented challenges.

“The problem with [traditional anti-psychotic] medications is that they block the dopamine receptors or they decrease the dopamine, and as people with Parkinson’s disease know pretty well, dopamine is what’s lost in Parkinson’s,” says Rachel Dolhun, MD, vice president of medical communications at MJFF. “So if we’re blocking the dopamine that we’re trying to already replace with our [Parkinson’s] medications, we can potentially worsen the motor symptoms of Parkinson’s disease.”

Earlier this month, the Food and Drug Administration (FDA) approved a drug, called Nuplazid, which was specifically designed to treat Parkinson’s psychosis without interfering with a patient’s dopamine medications.

Hear more from Dr. Dolhun about PD psychosis and Nuplazid through the Third Thursday Webinar from The Michael J Fox Foundation on May 19, 2016 at 12 p.m. ET/9 a.m. PT. Register now.

Source:: MJFF Podcasts

Attend a Partners in Parkinson’s Event from Your Own Home

By Allyse Falce

On May 14, Partners in Parkinson’s will broadcast a full day of educational panels online, available to view on any computer, laptop, tablet or phone.

Partners in Parkinson’s is an educational initiative developed by The Michael J. Fox Foundation and the pharmaceutical company AbbVie to connect the Parkinson’s community with information and resources to optimize one’s care. These full-day events feature sessions with clinicians, researchers, allied health care professionals and people living with Parkinson’s and their loved ones.

To date, Partners in Parkinson’s has hosted 22 in-person events in major metropolitan areas across the United States. This marks the first online event, free and open to anyone with an Internet connection.

When:
Saturday, May 14
12 p.m. – 5:30 p.m. ET/9 a.m. – 2:30 p.m. PT
Register Now

Topics of discussion will include:

  • How Parkinson’s impacts everyone differently
  • How to tailor a care team that meets your specific needs
  • What to know, ask and expect from an appointment with a movement disorder specialist
  • What is happening in Parkinson’s disease research
  • How to build a healthy and active lifestyle

Viewers will have the opportunity to submit questions to our moderator and panelists throughout the day.

Not available on May 14? This virtual program will be available later this year to watch on-demand.

For more information, or to RSVP, visit partnersinparkinsons.org.

Source:: Fox Feed Blog

APDA Newsletter for Winter 2016

PAA is proud to share the Winter 2016 edition of the American Parkinson’s Disease Association (APDA) Newsletter, Insights. Please click the following link to download: APDA Newsletter for Winter 2016.

Registration is open for Partners in Parkinson’s Birmingham!

Registration is open for Partners in Parkinson’s Birmingham and The Parkinson’s Association of Alabama is thrilled to be the local partner for this fantastic initiative! This event is open to the public and admission is free. Partners in Parkinson’s Birmingham is March 19th from 9:00 AM to 3:30 PM at the Cahaba Grand Conference Center.

Partner’s in Parkinson’s is a strategic collaboration between The Michael J. Fox Foundation and AbbVie intended to inform and empower Parkinson’s patient’s and families so they may influence the best possible care through every stage of the disease.

To register and learn more about this great event, visit: PARTNERSINPARKINSONS.ORG/ATTENDBIRMINGHAM