PAA is thrilled to be the beneficiary of a Parkinson’s Patients Art Show, hosted by Naked Art Gallery. Below is a great article from Iron City Ink that details the personal connection between Parkinson’s Disease and Vero Vanblaere, owner of the Naked Art Gallery.
PAA is thrilled to be the beneficiary of an art show featuring art by Parkinson’s patients! We hope you’ll join us on Friday, February 18th from 5:00 – 8:00 PM at the Naked Art Gallery (3831 Clairmont Ave S, Birmingham, Alabama 35222) for this unique showcase of talented artists.
Among the critical discoveries so far, the research has shown that regular visits to neurologists, more exercise, and more attention to mental health could help improve patients’ wellbeing.
The Parkinson’s Outcomes Project is evaluating a broad range of factors associated with the disease, including medications, treatments, movement symptoms, cognition, anxiety and depression, and the disorder’s burden on caregivers.
Launched in 2009, the project has become a comprehensive platform for studying the lives of Parkinson’s patients. And it has led to the formation of a consortium of 29 experts in five countries.
The study includes over 100 people who have lived with Parkinson’s for more than 30 years and 83 who learned about their diagnosis before they were 30 years old. Its records include 25,000 visits to doctors and information from almost 9,000 caregivers.
Key conclusions drawn from the study include:
Regular visits to neurologists should be a priority for patients and caregivers because it could save thousands of lives a year.
Recent research has listed regular visits to a neurologist as an important step in Parkinson’s management. However, in a 2011 study, only 58 percent of 138,000 Parkinson’s-related difficulties led to neurologist care. Race was a significant demographic predictor of neurologist treatment, with non-whites being less likely to receive care.
Doctors should give patients’ physical activity more attention because studies have shown that increasing exercise and movement to at least 2 1/2 hours a week can slow the decline in patients’ quality of life.
Researchers have found that, in Parkinson’s, it’s not the type of exercise a patient engages in, but the frequency of the workout that’s important. Physical therapists recommend exercises whose goals include improving balance and coordination, flexibility, endurance, and strength.
Patient’s mental health should be a priority because researchers have found that depression and anxiety are leading factors in patients’ overall health.
Depression is one of the most common non-movement symptoms of the disease, with up to 60 percent of patients affected at one time or another.
Finally, doctors should do a better job of addressing gender differences between patients. A key reason is that many men can rely on wives and other family members for daily support and doctor visits. Women are less likely to have family caregiver support and be more frequent users of formal, paid caregiver services.
“We have obtained a wealth of information in what now represents the broadest and most inclusive patient population ever assembled in a clinical study of Parkinson’s,” Peter Schmidt, the senior vice president of the Parkinson’s Foundation, said in a press release. He has been directing the study.
“This project is truly innovative in that it not only follows thousands of patients over time, but that it studies everyone with Parkinson’s, from the newly diagnosed to people who have lived with the disease for 30 years or more,” added Thomas Davis, the study’s co-chair.
Researchers have been using the Parkinson’s Foundation’s Centers of Excellence network of 42 medical centers to enroll patients in the study.
In addition, “we are studying the quality of Parkinson’s care delivered at our Centers of Excellence to help patients who aren’t being seen at one,” said Fernando Cubillos, who oversees the study’s operations. “Our goal is to help identify the best care and disseminate that information widely.”
The post Parkinson’s Foundation Enrolls 10,000th Patient in Largest Clinical Trial of the Disease Ever appeared first on Parkinson’s News Today.
Source:: Parkinson’s Today
Dutch researchers have developed laser shoes to help Parkinson’s patients overcome a brain disconnect that causes them to stop walking when they want to keep going.
Lasers attached to each shoe give patients a visual cue of where they need to go. Without a visual cue, the brain disconnect often leads to patients freezing in place while walking. The freezes, which can last from several seconds to several minutes, increase the chance of a patient falling.
The lasers that the Dutch team added to the tops of shoes project lines on the floor that provide patients with the visual cues they need. The lasers work in sync with each other. One projects a line until the patient takes a step along that line. Then the laser on the other shoe projects a line.
Researchers published a study on the shoes in the journal Neurology. The title of the article is “The laser-shoes – a new ambulatory device to alleviate freezing of gait in Parkinson’s disease.”
A debilitating symptom of Parkinson’s, freezing episodes are also dangerous. Because a patient’s foot remains on the floor while their upper body continues moving forward, it is easy for them to lose their balance and fall.
Dr. Murielle Ferraye and her colleagues at the University of Twente and Raboud University say the shoes reduced wearers’ freezing episodes by 46 percent. And when freezes did occur, the shoes cut the duration of the episodes in half.
Walking problems are most likely to occur when patients fail to take their medication on time. Not surprisingly, the researchers said the shoes provide the biggest benefit in these cases.
Parkinson’s patients can sometimes find visual cues such as street-crossing lines to help them walk. Inside their home, they can use floor tiles as cues. The laser shoes will provide them with cues all the time, indoors or out, the researchers said.
How do the visual clues work? By looking at objects on the floor, patients can activate circuits in their brain that overcome the disconnects that cause the freezing episodes.
“Our tests were administered in a controlled lab setting with and without medication,” Ferraye said in a University of Twente news story.“ Further research in their [patients’] everyday environment is necessary.
“Of the 19 patients who tested the shoes, the majority would be happy to use them,” she said. “The patients did not seem to mind that the laser was activated for each single step. Ideally, the laser should only be activated once the blockage is detected, but we’re not quite there yet. Freezing is a very complex phenomenon.”
The post Laser Shoes Help Prevent Parkinson’s Patients from Freezing in Place While Walking appeared first on Parkinson’s News Today.
Source:: Parkinson’s Today
The January NeuroScience Cafe is right around the corner and this month’s topic is The Brain-Gut Connection: Parkinson’s Disease. Brought to you by UAB’s Comprehensive Neuroscience Center (CNC), the January cafe will be held at the Hoover Public Library (200 Municipal Drive, Hoover, AL 35216) on Monday, January 22 at 6:30 PM and lead by Dr. Haydeh Payami from the Department of Neurology at UAB.
The overall goal of these cafés is to help educate the public on the latest clinical care and neuroscience-related research taking place at UAB. Our audience is typically made up of older adults as well as individuals and family members who have been affected by the topic. The program runs for about an hour and is very casual and relaxed!
We would love for anyone involved in the Parkinson Association of Alabama to come and learn about the insights from neuroscience research
In this video from TIME, learn about the evolution of Parkinson’s disease treatment since the late 1950s. Vice president of media communications for the Michael J. Fox Foundation, Dr. Rachel Dolhun, discusses how treatment for the disease has developed over the years.
Dr. Dolhun explains that while the diagnosis procedure for Parkinson’s disease hasn’t changed too much since the 1950s, the way the disease is treated has changed substantially. Back then, there were no treatments for Parkinson’s disease and now there are many treatments to help with the symptoms of the condition. In addition, five new treatments are currently in clinical trials that may slow or stop the progression of the disease.
As well as medications, surgeries such as deep brain stimulation have help modern day Parkinson’s patients overcome some of the more pronounced symptoms of the disease.
Parkinsons’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
The post The Evolution of Treatment for Parkinson’s Disease appeared first on Parkinson’s News Today.
Source:: Parkinson’s Today