The Season of Giving

We hope you’ll consider the Parkinson Association of Alabama during the season of giving. It is through the generosity of donors just like you that PAA realizes it’s mission to improve the lives of Parkinson’s patients, caregivers, and loved ones throughout the State.

Click here to donate online or contact Mary T if you’d like to send the gift of a PAA donation to a friend or loved one. For gift donations, we can send the lucky recipient a beautiful card on your behalf to notify them of your gift.

 

Save the Date! Taste for a Cure 2017

Save the date Birmingham! PAA is thrilled to announce that Taste for a Cure 2017 is Thursday, April 27 at 6:30 PM. We look forward to seeing you at Haven for another great evening of:

Proceeds benefit medical research towards a cure for Parkinson’s disease. Options to purchase tickets online will be available soon and you can follow us on Facebook or Twitter for the latest updates. If you’d like to be a sponsor for this event, please contact Mary T Miller for more information.

 

UAB receives BRAIN Initiative grant for DBS treatment of Parkinson's

UAB receives BRAIN Initiative grant for DBS treatment of Parkinson’s

UAB investigators have won a prestigious White House BRAIN Initiative grant to study the potential benefits of new technology coupled with newly discovered biomarkers in deep brain stimulation for Parkinson’s disease.

The University of Alabama at Birmingham has received a BRAIN Initiative grant of $7.3 million over five years from the National Institutes of Health to study new technology that could improve outcomes from deep brain stimulation, an increasingly important treatment for Parkinson’s disease and other movement disorders. [CLICK TO READ MORE]

Talk of Alabama: Find a Potion for Parkinson's 2016

Watch Talk of Alabama: Find a Potion for Parkinson’s

2016 Find A Potion for Parkinson’s!

Registration is open for the 2016 Find a Potion for Parkinson’s event!

This year’s event is Saturday, October 29th at Gamble Park in Jasper, Alabama. The Parkinsons’s Association of Alabama is thrilled to once again be the beneficiary of this fun, active fundraising event hosted by Inspire Fitness.

Participants have 3 choices through which to show their support: 10K run ($30), 5K run ($25), and a 1 mile Fun Run / Walk ($15). The Fun Run begins at 8:30 AM, with 10k and 5k kicking off at 9:00 AM.

This family friendly event is open to the public and we encourage our area supporters and partners to attend! To register for this event please download the registration form and follow the enclosed instructions. Donations are welcome and the registration form includes related information for those that can’t attend the event but want to contribute.

For the latest news on this event, check out the Facebook event page. For additional information, email whitea@wcslive.com and atm4uab@hotmail.com.

Meet the Kansas Volunteer Advocating for the PD Community

By Allyse Falce

The Michael J. Fox Foundation’s policy and advocacy volunteers are a dedicated group of individuals who work to advance government initiatives in support of people with Parkinson’s disease (PD). They meet with their elected officials in Washington, DC; educate their communities on PD; and build relationships with local government officials to advance policies in their states.

Our volunteer from Kansas, Ron Dover, explains how public policy impacts people with Parkinson’s disease and why he advocates for the PD community. Stay tuned for upcoming profiles of policy and advocacy volunteers across the country.

Explore policy issues affecting the Parkinson’s community and learn how to contact your elected officials to make your voice heard.


1. What is your connection to Parkinson’s disease?

Ron Dover (RD): I was diagnosed with Parkinson’s disease in 2008. I consider myself to be lucky; even though my PD has progressed, I’ve been able maintain relatively normal movement. I attribute that to aggressive, imaginative and patient-centered management by my movement disorder specialist.

2. Why did you choose to become a policy and advocacy volunteer?

RD: Volunteering for The Michael J. Fox Foundation is the most effective way I can contribute to the goal of finding a cure and developing new therapies for those living with PD today. Achieving this goal is vital to the health of all of us with Parkinson’s disease and our caregivers.

3. This August you met with your U.S. senators’ staff while they were in their home states. Why is it important to hold these meetings, and what did you discuss?

RD: These meetings provide an opportunity for the constituent’s voice to be heard. It reinforces the fact that I’m the congressman’s constituent who actually has the disease — not a paid lobbyist.

I met with both my senators’ staffers, and I believe meetings with staffers can be as valuable as a meeting with a senator or congressperson themselves. The staffers don’t have the same limits on their schedule, and I believe it when a staffer says they’ll share our concerns with their member. If you can get on the same page as the staffer, you’ll be in good shape.

In these meetings we discussed the most pressing issues affecting the Parkinson’s community: securing $34 billion for the National Institutes of Health and $16 million for the Department of Defense Parkinson’s Research Program; passing the pending neurological disease data collection bill; and supporting telemedicine to improve health care for many individuals.

I’ve had a relationship with my U.S. representative, Kevin Yoder (R-KS), since 2002. I know he’s an ally of the Parkinson’s community, and I hope to have a meeting with him soon to discuss the policy issues affecting people with PD.

4. What is your favorite part of advocating for the Parkinson’s community?

RD: Knowing that through my efforts, and those of my fellow advocates, we can effect significant change that will benefit patients, families and caregivers.

Source:: Fox Feed Blog

Bill Wilkins Interviewed for Georgia Focus

 


WPF Co-Founder Bill Wilkins Interviewed for “Georgia Focus”

Tune in this weekend, or click to listen online as John Clark from Georgia News Network interviews a Parkinson’s Disease panel consisting of WPF Co-Founder Bill Wilkins, Team Cantore Founder Tamra Cantore, and Dr. Jorge Juncos, Emory Healthcare. Topics include information about Parkinson’s Disease, our upcoming “Polo for Parkinson’s” event, and Team Cantore’s “Sherwin Williams Countrified Rock for Research“.

THANK YOU to our Sponsors!

Jeff & Anne Keefer

Don & Cathy Allman

DETAILS
Sunday, October 9
Chukkar Farm & Polo Club
1140 Liberty Grove Road, Alpharetta, GA 30004
Gates: 1:00pm Polo Match: 2:00pm
Cost: Adults $50, Children $5
BUY TICKETS

RSVP via Facebook and invite your friends

We hope to see you there!

– Wilkins Parkinson’s Foundation

Twitter @wilkinspf WPF on Facebook
Copyright © 2016 Wilkins Parkinson’s Foundation, All rights reserved.

 

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Source:: Wilkins Summer Newsletter

Breaking News: A New Dyskinesia Drug Will Be Submitted to FDA This Year

By Holly Teichholtz

A new formulation of amantadine to better treat levodopa-induced dyskinesia is entering the home stretch. Its developer, Emeryville, California-based biotech Adamas Pharmaceuticals, expects to file an NDA (New Drug Application) with the U.S. Food and Drug Administration later this year.

According to Nasdaq:

“Data from the study demonstrated a statistically significant reduction in LID at 12 weeks in patients receiving ADS-5102 compared with placebo, as assessed by the Unified Dyskinesia Rating Scale (UDysRS). The candidate was safe and generally well tolerated. The study met its primary endpoint.[…] Results from the study showed an improvement in activities of daily living (ADLs) in PD patients.”

As FoxFeed reported in December 2015, the company measured the impact of the drug using a new dyskinesia rating scale developed by Chris Goetz, MD, and Glenn Stebbins, PhD, of Rush University Medical Center with support from The Michael J. Fox Foundation.

Source:: Fox Feed Blog