Jimmy Choi is a marathoner, Team Fox member, husband and father living with Parkinson's disease (PD). In the hopes of inspiring the PD community, Jimmy recently shared his journey to becoming an avid marathoner with the NY Observer and Runner's World.

At 27, after a diagnosis of young-onset Parkinson's disease, Jimmy admits he was in denial. For the first eight years he progressed to the point he needed to walk with a cane. Then, one day he fell while carrying his infant son down the stairs. This became his turning point.

Soon after, Jimmy realized that physical activity could be a major motivator and he started running. First he completed a 5k race, then a half marathon and then he began training for the full Chicago Marathon. When the marathon spots were filled, Jimmy sought other opportunities of running under a charity bib. And that's where he came across Team Fox. And the rest, so they say, is history.

For Jimmy, running with Team Fox has changed the course of his life: "What I thought was just a ticket into a race became probably one of the biggest and most life-changing decisions I've made." The upcoming TCS New York City Marathon will be his ninth marathon, and to date, Jimmy has raised more than $40,000 through his Team Fox athletic events.

In total, 130 Team Fox members (including seven who have PD) will run the NYC marathon this Sunday. They are on track to raise an impressive $1.1 million collectively — 100 percent of which will go directly to the Foundation's research programs.

Good luck to Jimmy and all Team Fox NYC marathoners! Look for the bright orange Team Fox gear, and we'll be proudly cheering you on from the sidelines.

Read Jimmy's full story in the NY Observer and Runner's World.

Want to run a marathon with Team Fox yourself? Submit an interest form today.

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Running 26.2 miles Toward a Cure

By Allison Boiles

Standing between the marathon runner and the finish line is 26.2 miles of pavement. Months of training test runners as they fly by sidelines full of cheerleaders and painted signs.

Now imagine running a marathon with Parkinson’s.

Jimmy Choi is a marathoner, Team Fox member, husband and father living with Parkinson’s disease (PD). In the hopes of inspiring the PD community, Jimmy recently shared his journey to becoming an avid marathoner with the NY Observer and Runner’s World.

At 27, after a diagnosis of young-onset Parkinson’s disease, Jimmy admits he was in denial. For the first eight years he progressed to the point he needed to walk with a cane. Then, one day he fell while carrying his infant son down the stairs. This became his turning point.

Soon after, Jimmy realized that physical activity could be a major motivator and he started running. First he completed a 5k race, then a half marathon and then he began training for the full Chicago Marathon. When the marathon spots were filled, Jimmy sought other opportunities of running under a charity bib. And that’s where he came across Team Fox. And the rest, so they say, is history.

For Jimmy, running with Team Fox has changed the course of his life: “What I thought was just a ticket into a race became probably one of the biggest and most life-changing decisions I’ve made.” The upcoming TCS New York City Marathon will be his ninth marathon, and to date, Jimmy has raised more than $40,000 through his Team Fox athletic events.

In total, 130 Team Fox members (including seven who have PD) will run the NYC marathon this Sunday. They are on track to raise an impressive $1.1 million collectively — 100 percent of which will go directly to the Foundation’s research programs.

Good luck to Jimmy and all Team Fox NYC marathoners! Look for the bright orange Team Fox gear, and we’ll be proudly cheering you on from the sidelines.

Read Jimmy’s full story in the NY Observer and Runner’s World.

Want to run a marathon with Team Fox yourself? Submit an interest form today.

Source:: Fox Feed Blog

survey.

Data collected from the survey will be shared anonymously with the FDA and will inform its summary report on Parkinson's disease (PD) and its drug approval process.

Parkinson's community member Gary Rafaloff sat on a panel at the complementary Patient-Focused Drug Development meeting at the FDA in Silver Spring, Maryland on September 22. He advocated for people with PD and contributed to the patient survey design.

Gary shared his experience in a blog post on PatientsLikeMe:

"During the meeting, it was difficult for me to tell how our presentations were going and whether they would have an impact on the FDA's staff ... One small item that I noticed, which suggests that they were listing, involves a question on the Patient Questionnaire. At the meeting, we were asked to choose from a list of Parkinson's symptoms the ones that were most impactful on our lives. In my presentation, along with several of the other panel members, we noted that they didn't include pain or orthostatic hypotension, two very common symptoms, on their list. I did, however, see that on the new follow-up survey the FDA is conducting, they have added both symptoms to the bottom of the list. So, at a minimum, they were listening as we spoke about these debilitating symptoms."

Read Gary's blog.

Take the survey and lend your voice to the FDA's Parkinson's drug approval strategy. Encourage others to do the same by sharing the link with your Parkinson's community.

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There’s Still Time! Take the Survey to Share Your Parkinson’s Experience with the FDA

By Allyse Falce

There’s still time to have your voice heard by completing an online U.S. Food and Drug Administration (FDA) survey about life with Parkinson’s. Tomorrow, October 30, is the last day to take the survey.

Data collected from the survey will be shared anonymously with the FDA and will inform its summary report on Parkinson’s disease (PD) and its drug approval process.

Parkinson’s community member Gary Rafaloff sat on a panel at the complementary Patient-Focused Drug Development meeting at the FDA in Silver Spring, Maryland on September 22. He advocated for people with PD and contributed to the patient survey design.

Gary shared his experience in a blog post on PatientsLikeMe:

“During the meeting, it was difficult for me to tell how our presentations were going and whether they would have an impact on the FDA’s staff … One small item that I noticed, which suggests that they were listing, involves a question on the Patient Questionnaire. At the meeting, we were asked to choose from a list of Parkinson’s symptoms the ones that were most impactful on our lives. In my presentation, along with several of the other panel members, we noted that they didn’t include pain or orthostatic hypotension, two very common symptoms, on their list. I did, however, see that on the new follow-up survey the FDA is conducting, they have added both symptoms to the bottom of the list. So, at a minimum, they were listening as we spoke about these debilitating symptoms.”

Read Gary’s blog.

Take the survey and lend your voice to the FDA’s Parkinson’s drug approval strategy. Encourage others to do the same by sharing the link with your Parkinson’s community.

Source:: Fox Feed Blog

Team Fox Event Preview: November 2015

By Shari-Liane Sangster

Autumn is here and Team Fox members across the country are embracing the turning of the leaves and the chill in the air by hosting festive events this November. Check out a few events from turkey trots to galas that can inspire you to start your own or join in on the fall fun!

See the full list of events near you on the Team Fox calendar.

November 13: Ready, Set, LIVE! Is hosting their fourth annual event at Langham Place in the heart of New York City. Who can resist an evening filled with an incredible silent auction, dancing, hors d’oeuvres and a limited open bar, all for the fight against Parkinson’s disease? Tickets are $75 and can be purchased online and at the door.

November 15: The Playing to Beat Parkinson’s Benefit Concert will be held at the ASDB Berger Performing Arts Center in Tucson, Arizona at 7 p.m. Local favorites Hot Club of Tucson will open for Run Boy Run. Tickets are $20 in advance and $25 at the door. Buy tickets online, or visit Tucson’s Antigone Books or The Folk Shop to purchase select seats.

November 22: Team ESB hosts Pancakes for Parkinson’s in Woodmere, New York at Congregation Sons of Israel from 11:00 a.m. to 1:00 p.m. This year Team ESB is excited to welcome master chef Michael Psilakis. Chef Psilakis will sign books and make custom crafted pancakes for the crowd. Learn more about the event, which will also feature a DJ and raffles.

November 26: The first Annual Turkey Trot for Parkinson’s is being held in Fairfax Station, Virginia at Burke Lake Park. The Trot will have a timed run/walk 5k and a 1-mile wobble gobble family fun run. Participants who register prior to November 16 will be guaranteed an official t-shirt to commemorate the day. This is a family, stroller and dog-friendly event for all ages. Register and make your miles count for a cure!

Inspired? There are many creative ways that you can join in the fall fun and create your own festive event! Check out teamfox.org for more information and to find events near you.

Source:: Fox Feed Blog

Researchers develop drug delivery technique to bypass blood-brain barrier

Researchers have successfully prevented the development of Parkinson’s disease in a mouse using new techniques to deliver drugs across the naturally impenetrable blood-brain barrier. Their findings lend hope to patients around the world with neurological conditions that are difficult to treat due to a barrier mechanism that prevents approximately 98 percent of drugs from reaching the brain and central nervous system.

Source:: Science Daily

Researchers announce blood-based biomarkers for early detection, diagnosis and staging of Parkinson’s disease

A blood test that can accurately detect early-stage Parkinson’s disease and differentiate it from later stages of the disease has been developed by a group of ressearchers. The test can also distinguish Parkinson’s from other neurological (Alzheimer’s and multiple sclerosis) and non-neurological diseases (breast cancer).

Source:: Science Daily

Gene could hold key to treating Parkinson’s disease

Researchers have identified a new gene linked to nerve function, which could provide a treatment target for ‘switching off’ the gene in people with neurodegenerative diseases such as Parkinson’s disease.

Source:: Science Daily

Cancer drug improved cognition, motor skills in small Parkinson’s clinical trial

An FDA-approved drug for leukemia improved cognition, motor skills and non-motor function in patients with Parkinson’s disease and Lewy body dementia in a small phase I clinical trial, report researchers. In addition, the drug, nilotinib (Tasigna by Novartis), led to statistically significant and encouraging changes in toxic proteins linked to disease progression (biomarkers).

Source:: Science Daily

Scientists make advancements that may lead to new treatments for Parkinson’s

A research team has made breakthrough advancements on a new molecular mechanism that may provide a means to “melt” pathological clumps known as Lewy clumps. These clumps are a hallmark sign of Parkinson’s disease.

Source:: Science Daily

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Vote for PAA in the StyleBlueprint Birmingham Non-profit giveaway!

We are in the running for a $5000 donation and need your help! Please vote for PAA in the StyleBlueprint Birmingham Non-profit giveaway!

The top 12 charities receiving votes this week will move on to next week, then down to 6 the following week, 3 the week after that, with the winner announced Monday , November 9. Whether we win or not, we are thrilled to have our name out there and appreciate the recognition. Please do vote and share this post with your friends and family on social media! Votes are submitted via email address and only one vote per week can be cast with a single email address. Thanks everyone!

You can vote for PAA by 1) clicking the image below to access the voting form, 2) scrolling down and selecting Parkinson Association of Alabama from the list of charities, and 3) providing your name and email address.

5000-giveaway-campaign-2015-birmingham-300x400

It’s time for some Polo!


It’s time for some Polo!

Join us tomorrow in Alpharetta, GA for a polo match with a purpose!

Don’t miss our 8th-annual fundraiser tomorrow, featuring an exciting polo match, silent auction, free BBQ lunch, open bar, ladies’ hat contest and more!

DETAILS
Sunday, October 11
Chukkar Farm & Polo Club
1140 Liberty Grove Road, Alpharetta, GA 30004
Gates: 1:00pm Polo Match: 2:00pm
Cost: Adults $50, Children $5
BUY TICKETS

Online ticket sales are open until noon on Sunday. Only cash and checks will be accepted at the gate.

See you at the Polo Club!

– Wilkins Parkinson’s Foundation

2015 SPONSORS

UCB, Inc.

Jeff & Anne Keefer, Beni & Diane Monaco

Intersection Kroger

Schreeder, Wheeler & Flint Monaco Mechanical

Nalley Lexus Roswell Coker Group Holdings

Boardworks Lamar Outdoor

Clear Channel Outdoor North Georgia Promotions

Comcast 'Cue BBQ

Ballast Point Brewing & Spirits

Team Cantore

Udall Center for Parkinson's Disease Research Lundbeck

Twitter @wilkinspf WPF on Facebook

Copyright © 2015 Wilkins Parkinson’s Foundation, All rights reserved.

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Source:: Wilkins Summer Newsletter