Shaky Hands – A Kid’s Guide to Parkinson’s Disease

My father has Parkinson’s Disease and the symptoms affect him daily in a variety of obvious, subtle, and nuanced ways. He is aware of the impact of many of these symptoms, but not others.

Family members and caregivers like me are affected differently, but in ways of similar breadth and depth. Feelings of anxiety or isolation, among others, are common for caregivers struggling to maintain an identity that acknowledges PD’s impact but isn’t completely consumed by it. The good news is that there are many coping tools available to adults. Support groups, respite care programs, awareness organizations and many other options offer adult patients, caregivers, and family members multiple opportunities to influence the best possible quality of life for everyone affected.

Children, conversely, have fewer obvious coping options and the impact of a PD diagnosis on their quality of life can often be difficult at best to even spot. Open discussion with a trusted loved one can make a huge difference in minimizing the impact of a diagnosis on a child. An interactive and open discussion with a trusted loved one is even better. The book Shaky Hands – A Kid’s Guide to Parkinson’s Disease by Dr. Soania Mathur offers a compassionate, thoughtful, and interactive tool through which to explore PD with any child – particularly those affected by a diagnosis. All proceeds from the book benefit research towards a cure for Parkinson’s Disease.

Save the Date: Polo for Parkinson’s October 11

Don’t miss our eighth-annual Polo for Parkinson’s fundraiser, featuring an exciting polo match, silent auction, BBQ lunch, open bar, ladies’ hat contest and more!

Sunday, October 11
Chukkar Farm & Polo Club
1140 Liberty Grove Road, Alpharetta, GA 30004
Gates: 1:00pm Polo Match: 2:00pm
Cost: Adults $50, Children $5

Also returning in 2015 is the “Ask the Expert” table, where attendees are invited to speak directly to Parkinson’s Disease specialists about recent research findings, new treatments, and clinical trials. We hope to see you in October!

RSVP via Facebook and invite your friends!

Mark your calendar for these other upcoming PD events in the Southeast:

Hope Flies Catch the Cure
Friday, September 18

Countrified Rock for Research
Thursday, September 24

– Wilkins Parkinson’s Foundation

Twitter @wilkinspf WPF on Facebook

Copyright © 2015 Wilkins Parkinson’s Foundation, All rights reserved.


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Source:: Wilkins Summer Newsletter